I write my blog to help myself work through my own emotions and feelings. I also write to help other people recognise symptoms and accept their emotions and feelings , I think that knowing there are others who also suffer, so its easier to accept that we are not alone even if we feel that we are. So many times i feel like i am a non-person and invisible as i sit in my wheelchair, me who was an active independent woman, me who dealt with the public and worked in the caring services, its such a turn around and even now after nearly three years still feels at times so hard to accept.
Disability has such a negative effect people because its soul destroying and also we feel so alone with our illness. We feel that nobody understands and our family feel helpless to understand what is going on with our body and come to terms with the fact that their loved ones are suffering , they/we have no focus on what the future holds and this chronic pain is at its worse intolerable .
So i write as a comfort to myself and others out there who suffer like i do.
At the moment I'm not good, i am very lethargic and i am not getting quality sleep because of the pain . Its a cycle of symptoms we never get used to . Noise and bright lights also effect me , so many different things can influence my day and still i can do nothing to help myself , i just have to accept that this is the way it is.
I have recently heard that some-one i know has been diagnosed with fibromyalgia in her arm , Val my thoughts are with you and I'm sending you healing thoughts.
We all need a hug sometimes, even when we try to be brave ......
hugs Kira x
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