Life for me is the same except I am now having to deal with added symptoms caused by the use of Pregabalin ( Lyrica)
My tongue is split , very tender, burns at times
I have problems with dryness in my eyes; nose; mouth; throat and further down , I have problems swallowing now, and I can only eat porridge or drink complan
I get mouth ulcers
Bladder/ bowel problems.
I am now waiting to go into hospital this coming Friday 18/12/15 for investigations. My iron levels are at 9 they should be 150 . This is causing its own set of problems , I find it hard to cope with feeling so weak and so poorly all the time.
My doctor is now taking me off Pregabalin ( Lyrica) it's been 6 months of hard labour dealing with the drastic withdrawals , I have another two months to go before I am completely off this medication and I would strongly advise anyone who is taking this to be very aware of the side effects it can cause. Why doesn't doctors warn us of the risks and withdrawals of coming off this medication Before we are put on it!! Give us informed choices !!!!!
I go on Friday to hospital for investigations that will determine if I have cancer , I'm very scared and I wonder where will this all end?
It feels like the past six years since I became poorly with Fybromyalgia I have been living in a bubble and I am more or less cut off from society. Anyone who knew me before I got ill will know how much I struggle with this for I loved life; I loved people; I was always a people person , outgoing, happy-go-lucky ! I'm now social phobic and my life only consists of visits to the hospital or doctor ,( even doctors visits are now telephone consultations and house calls; same with nursing services)
I feel old before my time and there's nothing I can do about it . I am bereaved and I grieve daily for the different aspects of my life that I have lost never to get back . Acceptance even now won't come
Life is precious , so live your life each new day as if it is a gift, for when you think about it well it is isn't it? One day our life will end and we will just become a memory for those who really cared about us .
Wish me luck for Friday
Hugs xx
