Wednesday 24 July 2013

Why ????????

Last nite must have been the worst i've had in a little while, normally i can cope with my pain, as my threshold is quite high , but i was awake til 4am finally took some herbal sleeping tablets and managed to get 2 hours sleep before i was awake again. Pain so intense that i sobbed with it and really honestly and truly didn't want to go on, i just couldn't see the light at the end of the tunnel . I just wanted it to end. It ok putting a brave face on things but no-one really knows how much and how badly i suffer, no-one but Colin.

Glad to say my pain is more bearable now ....



The hydro therapy pool-

the nearest to our home is in Nairn , miles away !!!!

Colin spoke to my doctor who was as much use as a chocolate fire guard, she offered a doctors pass to get me into the local swimming pool , no good at all as a hydro pool has to be at body temperature. Swimming pools in general are not .

He also spoke to my Occupational Therapist who informed him that there is a big demand for a hydro pool , they have the staff , they have the equipment, they just don't have a pool. She told Colin that on the site where the New Larbert hospital is built there was infact a hydro pool which they demolished . Seems to us to be such a waste Sooooooooooooooooooooooooooooooooooooooooo

Colin is on a mission to get as much awareness as possible and sponsored help  to enable a new pool to be built , to be used for as many as possible. Facts show that Fibromyalgia reacts well to this sort of thing , but also when you think of all the disabilities and people who could use the pool , well its got to be a good thing even if it didn't help Fibro .


Life is hard isn't it , but people's spirits are strong and we always manage somehow to pick ourselves up again. Thanks to the people who love us and our carers .

If you can support this cause in any way even just by word of mouth to others , then please do


hugs Kira x

Tuesday 23 July 2013

Its been almost a month since my last blog

I didn't realise it had been so long since i last wrote my blog. Almost a month !!!!!




We went to the Lakes for a few days break and i had a lovely time , went to Beatrix Potters cottage , i found it all so enchanting and now I'm a fan of her books, written for children but hey I'm a big kid at heart :-)  Colin bought me 2 books and when we go back i want to start a collection to keep my inner child happy lolgiggle . If you have never been to the Lakes i would definitely recommend a visit, its  so quaint and tranquil a place of peace , everyone there is so friendly too ....

 But,  boy did it tire me out. Slept for ever when we got back , and since then been hounded with so much intense pain that is now focussing in my shoulders and neck area along with the other pains and spasms that just seem to always be there . feels like i've been pinned down by the shoulders by a vice :-( I'm going to speak to my doctor today about referring me for Hydro Therapy , I'll update you on that later .

I just want to say that not everyone suffers the same intense symptoms as i do so if you are catching up with me for the first time then please be aware of this and that many sufferers can work and live a nearly normal life . I used to work and live a life that suited my needs, i was happy and slept when i needed to , until i was hit by a virus again which floored me and slowly fibromyalgia took over my body left me now disabled , a wheelchair user and unable to do even small tasks ... but life goes on and i do have good days, they are few and far between but i have them and they lift my spirits and keep me going. Also the love of my husband/carer Colin , he is a massive support to me .

I write poetry and i post it on AllPoetry.com you should go take a look and read some of the stuff posted there not only by myself but by other poets . I'm sure you will enjoy your visit.

On the plus side i am at the moment talking with publishers and undergoing publishing my first book which will be available for sale on Amazon . I'm so excited about this , it also gives me something to look forward to. An ambition achieved after so many years of thinking yes, one day i will. well one day has come :-)

I'm so sore and so tired just now so my book is helping lift my spirits .

well i've written as much as i can for now as I'm sore and find it difficult at times to type because of the pain and stiffness, you'd think typing would help ease the stiffness but it doesn't, if anything it makes it worse :-(


Have a good day


hugs
Kira x