As sufferers will tell you, PAIN is the main symptom coupled with varying degrees of tiredness and limited mobility. Here on this web site we look at the critical issues and provide a "drill down" opportunity to learn more about Fibromyalgia and see links to articles, web sites, discussions groups and more.
Fibromyalgia is now more readily recognised and acknowledged by the medical profession, but despite this sufferers often feel helpless and isolated and regularly seek knowledge, treatments and support.
As one sufferer said "my doctor said "Fibromyalgia will not kill you.", but I said, "fineBUT can I live with it?".
The disease is not life-threatening, though the degree of symptoms may vary greatly from day to day with periods of flares (severe worsening of symptoms) or remission.
This portal site is visited by sufferers, their carers and the medical profession, who seek ongoing knowledge and education, and the opportunity of making contacts and online discussions with sufferers, carers and medical personnel.
1% to 3% of the population are thought to suffer from Fibromyalgia, the majority being women in a ratio 9:1. Although 20-50 is the common age range for sufferers, many claim to have had the illness since childhood or for many years before being properly diagnosed or recognised.
There is no specific "cure" as such and much confused publicity and false promises. Treatments vary between individuals and provide varying degrees of relief.
Husbands, wives and partners who get involved in the sufferers care often find it difficult to cope as the condition worsens, so we focus on their plight as well as the actual sufferers. See Fibrolads
Canada and North America are far more advanced in knowledge, research and treatments than the UK, Europe and Australasia where there is still a lot to learn. Other countries have varying degrees of knowledge, sufferer population, research and treatments, which we hope to feature on this site.
Please save our URL to your favourites and pass on details of our site to friends and contacts who may benefit from the information, knowledge, contacts and advice we offer on our site.
Please Contact Us if you want to tell us useful news, or ask questions which we do not cover on these pages. We cannot give your personal medical advice but we can use your knowledge and experience to build a better resource. sitWW
www.fibromyalgia-support.net also includes the sites www.fibromyalgia-support.comand www.fibromyalgia-support.co.uk map
Fibromyalgia Support Net is a web portal site that sets out to make finding information about Fibromyalgia quick and easy.
ABOUT USThis site is being developed as a "work of love" by Maurice and Mary Clarke. Mary is aFibromyalgia sufferer for over 20 years. They have been married over 37 years and live in Rugby, UK and have 4 grown up children and 3 grandchildren.
The site is based on their knowledge and experiences of the illness, and how acceptance of it has changed across the UK and indeed the world. The strain it puts on public health services and finances is enormous, plus the sufferers and their carers remain confused over many aspects of Fibromyalgia and ask countless questions over what is it? do I have it?, what can I do to treat it? is there a cure?, etc.
In 2008 they helped found the Rugby Fibromyalgia Support Group which now boasts some 70+ members from Warwickshire, Leicestershire and Northamptonshire. Mary is current chair and Maurice secretary. For details of the group phone 01788 333755 or contact us
Maurice recently founded a separate group "Fibrolads" for men who live with ladies who have FM. More details on Fibrolads click here
There is much confusion, mis-understanding and bias stretching from across the medical profession to husbands, wives, partners, friends and relatives of sufferers.
There is an ongoing need for a simple, straightforward web site which tell it as it is, and simplifies and condenses the facts from fiction, the claims and the denials.
The site is based on a number of key elements;
- Unbiased - not driven by the need to promote specific treatments and "cures", but to give options and highlight advantages and reservations.
- Simple - an easy drill down approach from key top level areas
- Groups - how to contact and meet with other sufferers and carers
- Treatments - is there a cure? or just temporary remission or an odd "good day". Is there more than pain killers? Do natural health products work?
- Request - more features, suggest ideas for topics or featured pages.
- Articles - written by experts worldwide on various Fibromyalgia issues
- Web Links - link to and from sites dealing with the wider and more specialist aspects of Fibromyalgia.
- Read one of our founder Maurice's own articles "Fibromyalgia - who cares enough?" here
Please Contact Us if you want to tell us useful news, or ask questions which we do not cover on these pages.
Fibromyalgia Support Net is a web portal site that sets out to make finding information about Fibromyalgia quick and easy.
USEFUL ARTICLES ON FIBROMYALGIA
The following articles have been written by various established medical writers around the world, in many cases they link to the authors own web site which provides additional useful information relative to the theme of the article. PleaseContact Us if you have an article on or about Fibromyalgia that we could consider for publication here.
- Fibromyalgia - changing life style challenges by Maurice Clarke
- Fibromyalgia: Who cares enough? by Maurice Clarke
- Fibro What? fights back - a CD to help spread the word about Fibromyalgia
- Yoga for Fibromyalgia sufferers - the ups and downs by Maurice S Clarke
- Fibromyalgia: What doctors don't know or tell patients By: Dorothy Anne Seese
- Fibromyalgia - the three challenges all sufferers face by Maurice Clarke
- Fibromyalgia Pain Management By Spencer Hunt
- Alternative Treatment In Fibromyalgia By Charlene Nuble
- Fibromyalgia and Fluoride By Tina Elmore-Wright
- Fibromyalgia - Healing Is Possible By Dorothy M. Neddermeyer, PhD
- Is Fibromyalgia a Psychosomatic Disorder? By Groshan Fabiola
- Fibromyalgia Swelling By Max Bellamy
- Reduce Fibromyalgia Pain By Sharon A Bell
- Fibromyalgia Specialists By Mike Leuthen
- Emotional Causes of Fibromyalgia By Claudia McNeely
- Fibromyalgia Diet Recommendations By Mike Leuthen
- Interesting Aspects of Fibromyalgia Symptoms
- Popular Myths and Misconceptions about Fibromyalgia
- Stress Experiences during Pregnancy and Fibromyalgia
- The Wide Spectrum of Fibromyalgia Symptoms
- The Relationship between Migraines and Fibromyalgia
- The Healing Properties of a Good Fibromyalgia Diet
- Various Possible Causes of Fibromyalgia
- Improve Your Health by Following Fibromyalgia Alternative Therapies
- Fibromyalgia Often Unspotted during Pregnancy
- Does Fibromyalgia also Affect Men?
- Depression Commonly Mistaken for Fibromyalgia or Chronic Fatigue Syndrome
- Definition and Interesting Features of Fibromyalgia
- Controversial Aspects of Fibromyalgia Pain
- Characteristics of Fibromyalgia Treatments
- Acupuncture as an Effective Alternative Therapy for Fibromyalgia
- Acupuncture in the Treatment of Fibromyalgia
- Are Chiropractors able to Cure Fibromyalgia?
Links to external web sites and associated programs and services from these articles is not an endorsement by Fibromyalgia Support Net of those facilities. Nothing on this web site should be taken as medical advice, sufferers should always consult their doctor, physician or consultant before undertaking any treatment or taking any medication including natural remedies. Users are advised to take all reasonable precautions before ordering, free or paid for services or products offered for sale via web links on this site.
I'm sorry that some of the pages appear difficult to read, this is because i copied and pasted them from another sight, however all in all I hope that this can be of help to some of you out there and answer some of your questions .
hugs Kira x
Thanks for the information Kira. Hugs Sue. X
ReplyDeleteMy pleasure Sue, I'm just aware that its posted so small and may be difficult to read . I'm still not feeling so good today but its just morning , things may buck up in the afternoon. Have a good day sis, hugs x
Delete